We started our trip to Pittsburgh Children's Hospital at 8 am and what a day it was! We didn't get home until 7 pm and the only place we stopped other than the hospital was KFC for dinner. Poor Tyler! It's such a long day for him. We arrived at the hospital at noon and didn't leave until 3pm!
Dr. Miller said there was no changes to his heart and she was pleased with that. Mommy was a bit disappointed but I'm trying to convince myself to be happy with it. I wanted to see an increase in his heart function, but Dr. Miller said it could be years before we see any improvement in his heart. His function was at 37% today. No leaky valves. No increase or decrease in size. She is strongly leaning towards him NOT having the left ventricular non compaction. We wouldn't know for sure without doing testing which really wouldn't change the treatment, so we'll skip putting him through the testing.
I still can't believe all of this has happened and it is from an illness he got at such a young age. But I try to tell myself that this is the path God wants me to go down and it's brought me closer to him and showed me how strong I can be. And I need to trust that he will take care of Tyler and that Tyler has a much bigger purpose in life than I can ever imagine.
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I know you don't know me. I found your blog by just looking through blogs on here. I have 2 daughters and 1 son. My oldest daughter has 3 children. My 2nd daughter has 1 son. And my son has been married for 1 year and they just found out they are pregnant (my picture is of my daughter-in-law and me). I have to say we have been blessed because none of them have had any serious problems! I admire you for how strong and brave you are! I just wanted to say I am very proud of you and I don't even know you! If everyone could find the strength in them that you have this world would be a better place! Thank you for sharing your story with me. Oh, Happy Birthday Tyler. One of my grandsons is also named Tyler.
ReplyDeleteThanks for the encouraging words! Tyler is really the strong one here but I can't let him down either, right?
ReplyDeleteYou must be a busy Grandma with that many grand-kids. Congrats on the announcement of another one on the way! Glad you found Tyler's blog and follow his journey.