Off To Pittsburgh!

We went to Pittsburgh for our second appointment with Dr. Miller of the Heart Center at Children's Hospital in Pittsburgh. Tyler, my mom, and I. It's such a long day when we go there. The trip up takes 4 hours, then we're there for at least 2 hours, and then we have to drive home. Tyler had another echo and EKG. His heart function was at 40EF and 20SF. Not too much fluctuation from the first visit. His heart showed a change in shape that leads the doctor to believe he has Left Ventricular Non-compaction Cardiomyopathy (LVNC). She suggests that we do genetic testing at our next visit to see if this was a congenital disease. This will help us to have a better understanding of how his disease may present itself in the future and the best treatment options.

Props to mom for getting us out of Pittsburgh without getting lost this time!